Social engagement
Social engagement: 9.1K social following, 7 posts in the last 12 months — below the industry typical range.
Investor mix
2 investors on record.
| Investor type | Count | Share |
|---|---|---|
| Other / undisclosed | 2 | 100% |
Hiring activity
Hires occasionally
1 role tracked across 1 of the last 12 months
4 Feb 2026 · Senior Vice President of Clinical Development
Based on job postings tracked across public sources.
Recent activity
18 Mar 2026
Event
Defying Rare Disease premiere on CNBC
2 Mar 2026
Partnership
LGMD2L Foundation
26 Sep 2025
Milestone
regulatory